A Little Extra Sparkle

Wednesday, July 26, 2006

Electrical Status Epilepticus Sleep

From the International League Against Epilepsy is this article, which is the most on-point description of Jack's seizures, their development and now treatment. It nails almost everything, including the absence of the ESES for almost 2 years, the progression from infrequent to frequent seizures, and positive treatment with clonazepam and anti-convulsants.

The negative part is under "Neuropsychological deterioration," which seems to imply that severe impairment will happen. But use of the term "associated" with ESES, seems to indicate that it's not a necessary result of ESES. Same with "Motor impairment", which seems to be where most of Jack's issues are.