Living with Epilepsy - another blog

This appears to be from someone in NC - sounds like they have my idea

Epilepsy Activism

Christa and I met with Dr. Dean today and discussed a number of different projects we would like to start in order to help people with epilepsy. About a year or so ago, Dean moved the Epilepsy Institute of NC to a new facility. In addition to Physician's offices, she also got enough room for a auditorim and several other rooms that can be used for outreach and educational purposes. We are quite excited and are looking forward to working with her to start some support programs for the region's eplepsy community.

Lesley - if you give me administrator privileges and I can add a link to our sidebar.

Epilepsy Action: Tassinaris Syndrome

Epilepsy Action: Tassinaris Syndrome - This is also known as Electrical Status Epilecticus during Sleep (ESES) and really seems to accurately reflect Jack's symptoms.