Electrical Status Epilepticus Sleep

From the International League Against Epilepsy is this article, which is the most on-point description of Jack's seizures, their development and now treatment. It nails almost everything, including the absence of the ESES for almost 2 years, the progression from infrequent to frequent seizures, and positive treatment with clonazepam and anti-convulsants.

The negative part is under "Neuropsychological deterioration," which seems to imply that severe impairment will happen. But use of the term "associated" with ESES, seems to indicate that it's not a necessary result of ESES. Same with "Motor impairment", which seems to be where most of Jack's issues are.

Living with Epilepsy - another blog

This appears to be from someone in NC - sounds like they have my idea

Epilepsy Activism

Christa and I met with Dr. Dean today and discussed a number of different projects we would like to start in order to help people with epilepsy. About a year or so ago, Dean moved the Epilepsy Institute of NC to a new facility. In addition to Physician's offices, she also got enough room for a auditorim and several other rooms that can be used for outreach and educational purposes. We are quite excited and are looking forward to working with her to start some support programs for the region's eplepsy community.

Lesley - if you give me administrator privileges and I can add a link to our sidebar.

Epilepsy Action: Tassinaris Syndrome

Epilepsy Action: Tassinaris Syndrome - This is also known as Electrical Status Epilecticus during Sleep (ESES) and really seems to accurately reflect Jack's symptoms.

Phase I Monitoring - What to Expect

Phase I Monitoring

Wake Forest Epilepsy Monitoring Unit

Monitoring Unit

We're one of a few centers in the southeastern United States with extensive nuclear medicine facilities in the monitoring unit, allowing radioisotope injection for SPECT (single photon emission tomography) scanning during a seizure. MRI (magnetic resonance imaging) and PET (positron emission tomography) scans, neuropsychological tests and intracranial EEG are also available to confirm the seizure focus.

Matthew 4:23-24

And he went about all Galilee, teaching in their synagogues and preaching the gospel and healing every disease and every infirmity among the people. So his fame spread throughout all Syria, and they brought him all the sick, those afflicted with various diseases and pain, demoniacs, epileptics, and paralytics, and he healed them.